Our project “setting community driven priorities about Polycystic Kidney Disease care: Establishing a multi stakeholder engagement team” has been extremely successful in engaging different stakeholders. We have established the advisory board which includes researchers, scientists, patients, and other stakeholders. We have representation from the University of Kansas Medical Center, the Center for Practical Bioethics, Tufts Medical Center, the Polycystic Kidney Disease (PKD) Foundation, Standardized Outcomes in Nephrology (SONG)PKD initiative, and industry. We also have patients and caregivers, research and clinical care coordinators, and patient advocates represented on the advisory board.